Home

NFF

Contact

Credits

DBSdonna.com
*DBS (Deep Brain Stimulation)

LineLineLineLineLine

Older Comments

1

Carol 
The film grabbed me with the opening song, and held on to me until the end when I had tears in my eyes. It was informative, heartbreaking, touching, and hopeful. It shows how a normal, happy life can be changed unexpectedly, and the impact on the family. It showed the courage it takes to keeping going, and ultimately to take the risk of surgery. How wonderful that it was effective and she has some of her former self back. That's a triumph to celebrate.  
Carol  
Valerie Weyand's friend

Monday, February 14, 2011, 09:10:44

1

DBSdonna 
Carol, thank you so much for your wonderfully descriptive and instinctual response above. I love how you write! And I am living life with great zest and happiness (if not always to the fullest.) ~ Donna

Monday, February 14, 2011, 20:08:04

1

Toni 
My husband had parkinsons. He also had the DBS operation twice, each side. Thanks to his willingness and courage to have these operations we were able to enjoy many more years together, I feel this film is a credit to those who were invloved. Well done!

Monday, February 14, 2011, 04:35:11

1

Donna 
Toni, I really appreciate your comments. You can't begin to cover everything in a 5 minute video and the fact that I know several incredibly brave people who've had DBS done more than once was one we didn't bring up in the video. He had a lot of courage, no doubt, but so did you as it's not easy to be the person waiting outside the O/R doors either! I'm so glad to hear that DBS gave you more quality time together. Please accept my delight that the DBS surgeries worked well for the two of you and my sympathy as it sounds as if he's now passed on. Wishing you peace ~ Donna

Monday, February 14, 2011, 05:51:39

1

Julie 
Donna, I saw your video on Jake's facebook page. You are an incredible inspiration to all. Wishing you all the best. Julie Prevatt

Monday, February 14, 2011, 01:46:01

1

Donna 
Julie, isn't Jake the greatest?! Such a nice man. Thank you for watchng and taking the time to comment. I wish you and yous all the best too! Donna

Monday, February 14, 2011, 02:56:17

1

Carole 
Wonderfully done film. A truly "feel Good" and inspirational story.

Sunday, February 13, 2011, 19:48:44

1

Donna 
Carole, I'm so glad that you mentioned this video made you feel good! That's what I wanted to achieve - an uplifting sharing of my joy at how my life has been so dramatically changed by the DBS. The other goal was to inspire others in similar situations to do whatever they can to improve their lives whether they have PD or another ailment. One thing I haven't mentioned about the DBS is how, as my doctor phrased it, "I need to learn a whole new body now." I don't have PD symptoms to contend with now so even something as small as a headache - that would have caused PD symptoms to kick in before - is now just a minor distraction. Thank you for watching the video and for taking the time to comment! ~ Donna

Monday, February 14, 2011, 01:36:22

1

Lolly 
What a wonderful film! I feel so proud to be your friend. You amaze and astonish me.

Sunday, February 13, 2011, 19:23:57

1

Donna 
Lolly, obviously not everything can be told in a video that's only 5 minutes long so my story about you, Diane, and Jeanne's never-to-be-forgotten show of friendship in Lewes didn't make it in. But, if it had, it would have only been one example of how wonderful and supportive my friends have been over the years I've been dealing with PD. My having PD was something that effected not just me, but all of you who cared so much too. This video was "meant to be" in my opinion. Read the DIRECTORS NOTES to find out how it all came about under unusal circumstances. I'm doing great and am looking forward to showing off the new me to the LOL's. Love you! Donna

Monday, February 14, 2011, 01:21:38

1

Guest 
Donna, this is a beautiful and powerful video which shares your miraculous results with all those suffering Parkinson's. What a legacy you are leaving in sharing your personal and brave testimony. I am proud of you and glad to call you friend! Maggie Brown

Sunday, February 13, 2011, 18:49:51

1

Donna 
Maggie, thanks so much for watching and for the nice commentary. I'm proud of you too as you start out on a new and exciting endeavor! Hugs! Donna

Monday, February 14, 2011, 01:13:50

1

Donna 
###I wanted to add a note of my own. If any of you haven't read the DIRECTORS NOTES section of this website, please do. Dan Weyand tells the background of how this video came to be and he does it in his own, funny way. I think you'll enjoy learning about all the weird circumstances surrounding the making of the film! ~ DBSDonna

Sunday, February 13, 2011, 14:24:43

Liked by

1

Guest

1

Ruth Buckley 
Super

Sunday, February 13, 2011, 14:15:42


1

Donna 
Thanks for watching! ~ Donna

Sunday, February 13, 2011, 14:36:29

1

Pam Kraich 
Donna,  
What a beautiful film you have chosen to share with all. You truly are an amazing woman and are very blessed with your beautiful family. You have gone through so much. I'm so happy this surgery has given back the life you have waited for. I will share this film with others, in hopes to get the word out about DBS. Enjoy yourself, you deserve it.  
Pam

Sunday, February 13, 2011, 13:10:53

1

Donna 
Thank you, Pam, for tellling me to enjoy life because I think that's the best advice ever no matter what shape you're in. It's a lot easier to do that now though, after DBS has made activities easier for me than it was before the surgery. I am just so grateful for every new thing I can do or actually things I don't do anymore like shake with dysknsia. Please feel free to share this film with everyone you know - the more that see it, hopefully the more who will benefit. ~ Donna

Sunday, February 13, 2011, 14:35:54

1

Lili Rambossek Keller 
Hi Donna,  
Val Weyand sent me the link and I just watched it with tears of sadness and the great joy! It was so good to see you and Darryl on the video and see what amazing progress you've made. What a miracle DBS is and hopefully people watching this video will be inspired by your story. Kudos to Dan and Tim also for the help (Val told me). Your boys are so handsome and it looks like you raised them to be amazing young men. I'm forwarding this to my sister Cindy, right now! Look for me on Facebook if you want to get in touch.  
 
Lili

Sunday, February 13, 2011, 12:49:58

1

Donna 
Hi Lily! How nice to hear from you. I've had the great fortune in my life to be surrounded by such a loving, wonderful family and friends who are equally great! Then add in my knowing such totally talented people (Dan, Tim, Maree McRae) and it's as if all the stars aligned to make the video something special in order to help others. I've sent several messages that I've received on to Dan telling him "This is why we made the video. This is who you made it for!" And he whole heartedly agrees. So I'm glad you enjoyed it. I would love to be in touch with you and CIndy once again! ~ Donna

Sunday, February 13, 2011, 14:31:28

1

Guest 
One of our nephews has a very "bad" tremor and he is going to have DBS in about a month. So glad I came across this film Donna. Thanks so much for making it for others to see and understand the possibilities of DBS. Congratulations and may GOD richly bless you and your precious family.

Sunday, February 13, 2011, 12:25:44

1

Donna 
I hope your nephew's surgery will be every bit as successful as mine has been in restoring him to a version of his old pre-PD self! He's already done the hardest part - deciding that DBS is the right course for him. Please come back and let us know how he does, okay? Bless him and all of your family too. ~ Donna

Sunday, February 13, 2011, 14:21:49

1

Chris 
Wonderful film - both informative and artistic. Power is in the intellect - thank goodness for those who dedicate themselves to knowledge.

Sunday, February 13, 2011, 12:21:04

1

Donna 
Chris, thank you for your wonderful comment! I do believe that there's power in intelligence used wisely, but a caring heart is equally powerful. Combine the two into brain researchers, doctors, nurses, and other medical professionals and we see greatness.

Sunday, February 13, 2011, 14:18:03

1

Jeanne 
Donna,  
This film is just beautiful. I watched it with Brian & Joshua & we were all so moved by your story. Seeing Brad & Spencer just brought tears to my eyes. You guys have weathered more stormy days than most & each of you have come out stronger & with such an appreciation of your family. I can feel your closeness & love for each other and especially how proud they are you Donna. I feel blessed to have met you those 16+ years ago & keep marveling at your strength, perseverance & humor through this PD journey of yours. This film is so inspiring & I have forwarded it on to many friends & family. Congrats on just a wonderful film!! Love, Jeanne PS Love the Herman Hits!!

Sunday, February 13, 2011, 11:18:47

1

Donna 
Jeanne and family - I'm so glad you got to watch the video! I think my guys did a wonderful job! I didn't see anything that anyone else had taped until the video came out because we wanted my responses to be my own and from the heart, not things I'd thought about. As for strength, perseverance, and humor, you've seen me at my very worst in Lewes and stuck right by me. I'd say that took a lot of perseverance and maybe somes perverse humor! I thank you for years and years and years of being a wonderful friend, Mrs. K! Love to you all - Donna

Sunday, February 13, 2011, 14:13:22

1

mary nash 
Beautifully done and very informative!!  
 
Thanks!

Sunday, February 13, 2011, 09:51:22

1

Donna 
Thank you for watching the video. I do appreciate your taking the time to watch and leave a comment.

Sunday, February 13, 2011, 14:07:03

1

Jill 
Truly inspiring, educational and uplifting. What a beautiful way to share your story and help others. It is a winner, trip or no trip, but I am cheering for you to win!

Sunday, February 13, 2011, 07:17:26

1

Donna 
Jill, thanks for your post! No secret about it - I'd love to win a trip to Hawaii - who wouldn't?! But the real reason for doing the video was to encourage others with illnesses to take what are often scary steps to help themselves as well as to point out the value of giving money to brain research. I hope it's achieving these two goals.  
 
I think all of the NFF videos are emotionally hard to watch because people are struggling to deal with some horrible conditions. My big struggle is over for now, so naturally my video is coming from a different angle. I'm an example of what successful brain research can result in. I appreciate your enthusiastic support, no matter what my purpose is/was!

Sunday, February 13, 2011, 09:27:37

1

Lynne Therrien 
Donna, the film is beautiful, moving and truimphant. You and your family are amazing, and it's wonderful to see that research and technology has givenyou back your life. Enjoy! Lyndy

Sunday, February 13, 2011, 06:23:15

1

Donna 
Lyndy, thank you for your enthusiastic support of the video! I know I keep repeating myself on this point, but I was lucky that I had such a great response to the DBS. Not everyone is that lucky. But I could have happily settled for even smaller improvements. So I want to encourage others to take a chance. Improvement is improvment, whether big or small. I am enjoying all the things that have returned to my life! ~ Donna

Sunday, February 13, 2011, 07:50:55

1

Valerie 
Donna, what a great blessing you and your story surely are to so many, and now, to even more folks through this powerful film! Your courage and determination are matched only by the love and encouragement spoken by your family. I'm so grateful for the success you are experiencing with DBS and for the hope your story inspires for others. What fun that you and Dan were able to team up for this project! The film beautifully captures your story - the devastation of Parkinsons and the promising future of continued research and treatment. (Can you tell how proud I am of my amazing brother?) Praying for continued good health and every blessing for you and your family, Valerie Weyand

Saturday, February 12, 2011, 22:20:27

1

Donna 
Valerie, you should be absolutely amazed at your brother! But then, he told me that helping people is what you do all the time - that it's what you DO - so I guess it runs in the family! Reconnecting with Dan and getting to spend time with your Mom while making the video was great fun! Now, he's ready to move on to the next project, but this one won't let him. The video seems to have taken on a life of it's own, which is all to the good if by doing so, it helps someone who needs encouragment along the way. Thank you for the good wishes and I return them to you for you and your family. ~ Donna

Sunday, February 13, 2011, 04:36:36

1

Becky 
Donna, what a beautiful family you have and an amazing love you've experienced. You are your film are very inspirational. God bless you friend.  
~Becky <><

Saturday, February 12, 2011, 21:30:16

1

Donna 
Becky, thanks so much for years of online friendship and support! You are so right as I have been very lucky in both friends and family in my life. Bless you right back. ~ Donna

Sunday, February 13, 2011, 04:28:06

1

Krista 
What a wonderful, inspirational journey you have chosen to share with the world! Bravo, Bravo, Bravo! I wish you continued good health. I will also share your video.  
God Bless You! Sincerely, a friend of the Millers from Illinois, Krista

Saturday, February 12, 2011, 20:33:06

1

Donna 
Thank you, Krista, for your comments and for sharing my video with others. There already have been a few "A Ha!" posts (as my husband would say) that have really made me glad we did the video. Your Miller friends in Illinois are the best people around and I'm glad we both have the opportunity to know such wonderful, caring people. Bless you and yours too!

Sunday, February 13, 2011, 04:26:01

1

Kay 
What a great video and thanks for sharing. Your positive attitude and knowledge about research is so important in keeping control of the disease. My attitude has always beenl like yours, I want to be in control. I am so happy to hear you have success with DBS. Keep up the good attitude

Saturday, February 12, 2011, 18:13:19

1

Donna 
Kay, thank you so much for posting such a supportive comment! Your kind of positive outlook and take charge attitude makes a big difference in whether you have PD or PD has you.  
 
Just FYI, the title for my film came from the closing words always used by a woman named Laura "Harley" Dean when she posted on a PD patient forum. I was fairly newly diagnosed when I began visiting the forum and she was my role model in how I wanted to treat the disease. I admired Laura so much then and even more now that I've "met" her long distance via phone conversations due to the making of my video. Best of luck and health to you!

Saturday, February 12, 2011, 19:36:58

1

Dee 
Wow! What an amazing story, with amazing results! Donna, you are an inspiration to all of us!

Saturday, February 12, 2011, 16:58:28

1

Donna 
Thanks for the nice comments, Dee! I appreciate your support in this endeavor. ~ Donna

Saturday, February 12, 2011, 17:05:37

1

Guest 
What a wonderful video! I am so glad that you are doing well. My sister has Parkinsons and I have watched her slow but steady decline. This give us hope. God bless you and I hope that you have many many wonderful years ahead to be and inspiration for your sons.  
 
Chelle

Saturday, February 12, 2011, 16:30:39

1

Donna 
Chelle - You, your familly, and your sister with PD are exactly who we made the video for! Not everyone has my awesome response to DBS as I did, but I probably could have been happy with even a small amount of improvement. If your sis is a candidate for DBS or clinical trials, encourage her to go for it. Believe me, by the time you convince yourself you'd be better off having brain surgery WHILE AWAKE than suffering through PD, the time until the surgery can't zip by fast enough. If DBS isn't an option for her, there are other cutting edge technologies out that might help. For example, have you heard of the pump which injects dopamine gel? I'm not a medical professional and can't give medical advice, but do encourage your sister to check out all avenues available to her. Something may be her "miracle" as DBS was mine. Fingers crosse for you all! ~ Donna

Saturday, February 12, 2011, 17:03:32

1

Guest 
Thank you so much. I will check into it and have her talk to her doctors. Thank you for your advice and your courage.  
 
Chelle

Monday, February 14, 2011, 18:14:33

1

paintergal 
So inspiring! What a blessing that this procedure had such positive results for you.

Saturday, February 12, 2011, 16:12:33

1

Donna 
Paintergal, thanks so much for watching the video. I'm very appreciative that I had such awesome results from my DBS. What's interesting is that I know several people who've had the DBS done more than once. One woman I know has had it 5 times! It makes that much of a difference in her life that she was willing to go through brain surgery - awake - five times. I think that says it all. ~ Donna

Saturday, February 12, 2011, 16:17:29

LineLineLineLineLine

More Comments: Page 1 | Page 2 | Page 3 | Page 4 | Page 5 | Page 6