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DBSdonna.com
*DBS (Deep Brain Stimulation)

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1

Guest 
Excwllent@ Ypur bpys ate fine young men.

Sunday, February 20, 2011, 11:06:16

1

DBSdonna 
Thank you! I think they're pretty great boys (oops!) men too. I appreciate your watching the video and commenting. ~ Donna

Sunday, February 20, 2011, 11:09:54

1

Ellen 
Donna!! What an amazing story and what an amazing person you are!! Enjoyed meeting you and your husband at the Bonefish Grill!  
This link was also just sent to me by my friend Debbie Barnes:)

Saturday, February 19, 2011, 13:03:11

1

DBSDonna 
Hi Ellen! I KNEW your last name was familiar for some reason. But then, Debbie knows EVERYBODY!!! That night at the restaurant, I was a little excited about the responses to the video I'd been receiving and I talk a lot when I get excited! (That's my story and I'm sticking to it!) We thoroughly enjoyed meeting you too and I'm glad the video touched you. ~ Donna

Saturday, February 19, 2011, 15:04:47

1

Madelyn 
Donna, What an inspiring personal story. The love and support your family provides is almost palpable in the film. Thank you for making the video and sharing it.

Friday, February 18, 2011, 14:07:34

1

DBSdonna 
Madelyn, except for me being a "little" emotional talking about PD, the video was a lot of fun to make. Thank you for watching and for your nice comments about my guys. They are the best. ~ Donna

Friday, February 18, 2011, 14:15:14

1

Siverlings5 
Donna,  
 
What a wonderful video telling your amazing story! I doubt many people come away from viewing this with a dry eye. It really sums up your family's journey through your Parkinson's diagnosis to your miraculous surgery last fall. The emotions of your entire family come across so naturally and the results are so compelling. As a long distance friend, it's such a joy to see you walking and moving so effortlessly since your surgery. Can't wait to see you in person to give you a great big hug!  
 
Love,  
Mary Beth  
 
PS - I think you are a shoe-in for the Hawaii trip. You all deserve it!!

Thursday, February 17, 2011, 18:20:00

1

DBSdonna 
Mary Beth - You will certainly see a major difference in me! I can now move effortlessly or I can sit still without moving at all - a lovely result that can best be appreciated by someone who has done the dyskinetic dance. As my family said in the video, it's not big changes that have had the most impact on my life, but the little every day things that I can do now whch make our life easier. Being able to read my own handwriting is way up on my list of small miracles! I can't wait to see you guys again to show off the new me and to hug you back! Love, Donna

Friday, February 18, 2011, 04:59:51

1

smaly51@msn.com 
Donna, thank you so much for your continued inspiration. You are, and will always be, that source of positive light that promotes belief in healing and endless possibility. Your video is beautiful and so are you.  
Sue

Thursday, February 17, 2011, 18:18:56

1

DBSdonna 
Sue, I very much appreciate your kind words. Because of what you're facing, it really makes me feel good to think the video may have encouraged you. Not that you need encouragement as you're such a positive person! Please know that my prayers and good wishes are with you and yoru family. Next year, you can make a triumphant video of your own! I know a great director...Love, Donna

Friday, February 18, 2011, 04:50:44

1

Patty Berglund 
Beautiful film!

Thursday, February 17, 2011, 18:18:24

1

DBSdonna 
Thank you for watching the video and for leaving your nice comment. ~ Donna

Thursday, February 17, 2011, 18:26:19

1

Jay Barish 
Hey, Super D! Wow - just awesome to see you a) take PD head-on (no pun intended) in LIVING life, b) take the leap of faith with a surgery I'd only known 'til now via a television report, c) take your life and your family's lives to the next level, and d) share your experience with others. Darrel & the boys walking fully hand-in-hand down the road with you is equally awesome. I've always been impressed with you, but I'm PROUD to have known you for 39 years.

Thursday, February 17, 2011, 18:17:52

1

DBSdonna 
Thank so much, Jay! It means a lot to get sucha compliment from you. I found a note you wrote to me in Juniro High the other day. It was writen in French and said - who knows?! Jr. High French class was a long, long time ago. Thank you again my friend. Love, Donna

Thursday, February 17, 2011, 18:25:18

1

Jim Comnillo, JHS Class of '77 
Hi Donna....as a 1977 Jefferson graduate (w/Tim and former coworker w/Tim as well)....I had to write and tell you how much I enjoyed watching your story! I think someone sent me the link at my FB page. I have been following Michael J. Fox's trials and tribulations with Parkinson's since he was diagnosed years and years ago. I can't recall if he had DBS or not. But from the results that you appear to be enjoying....he should think strongly about doing it himself. It's almost painful to watch him struggle when he's being interviewed....or in one of his rare acting appearances. At any rate....I'm happy for the great results that you have had with this procedure. I'm sure it was a very scary and difficult surgery to go through. But it looks like the worst is behind you. Warmest regards for your continued good health! Jim Comnillo

Thursday, February 17, 2011, 18:17:05

1

DBSdonna 
Thank you for the great comments! From what I've heard, MJF is waiting for the cure. He has not had DBS surgery. Not everyone benefits from it as much as I have, but it would be worth it for even a smaller improvement. The surgery was scary to contemplate and it was very long, but it wasn't nearly as bad as I had imagined. And worth it, definitely worth it! ~ Donna

Thursday, February 17, 2011, 18:25:57

1

CHUCK 
DONNA,JUST WATCHED YOUR VIDEO AND ALL I CAN SAY IS "WOW". FIRST AND FOREMOST IS WHAT YOU'VE ACCOMPLISHED. I DON'T KNOW MANY PEOPLE WHO WOULD HAVE THE COURAGE TO "EXPERIMENT" WITH SUCH NEW TECHNOLOGY. YOU DID IT AND I KNOW YOUR FAMILY IS GLAD YOU DID. ALSO, IT WAS ENLIGHTENING TO SEE YOUR PRIVATE STRUGGLE AND HOW MUCH THIS HAS CHANGED YOUR LIFE. GOD BLESS YOU AND GOOD LUCK WITH THIS FILM. I'VE ALREADY FORWARDED IT OTHERS.  
 
CHUCK

Wednesday, February 16, 2011, 10:15:22

1

DBSdonna 
Chuck, thank you for the "wow!" I actually waited long enough that DBS is no longer considered to be an experimental procedur...

Thursday, February 17, 2011, 18:15:56

1

Pamela (DiPentino) Lombard 
"A Fateful Coincidence" "Awesome!" ... I am moved and left without words.  
 
No matter if you win the Film Festival or Hawaii YOU, your family, the film, and all it's makers are WINNERS! ...oh and the doctors and researchers too!  
 
Thank YOU and God Bless!  
An old Jefferson High Alumni who received this email link from another, Carol Chaney :)

Wednesday, February 16, 2011, 10:11:53

1

Jodi Little 
Awesome! Thanks for sharing this beautiful story of HOPE!

Wednesday, February 16, 2011, 06:31:38

1

DBSdonna 
Jodi, thank you for watching our video and for taking time to leave such a nice messaage. Donna

Wednesday, February 16, 2011, 07:09:21

1

shelley johnson 
Hi Donna, This is such an awesome video. The guy who produced it for you, his sister is my son's speech therapist at school! A small world. He did an awesome job. You look wonderful I am going to get where you are!!!! I have Parkinson's but it doesn't have me! That is so good. I hoope to see you soon.  
Love to you and your family, Shelley Johnson This is the best video I have seen!!!

Tuesday, February 15, 2011, 22:04:39

1

DBSdonna 
Hi Shelley! I thought of you many, many times during the making of the video. You are my hero - 3 DBS surgeries, small kids still at home, etc. and still such a great attitude! I sincerely hope you get to where I am physically or even better. It is such a small world and I'm glad Valerie, Kim, or whomever shared the video with you. The title of the video came from someone else I completely admire. Laura"Harlely" Dean always ends her comments on a Parkinson's patient forum with those words. Her PD fighting attitude really helped me when I first was diagnosed with PD over 14 years ago. Sending love and friendship to you and yours too! Donna

Wednesday, February 16, 2011, 05:50:25

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1

DBSdonna

1

Guest

1

DBSdonna 
###The Neuro Film Festival entries closed today so now it's just waiting on the judges to decide on the winners and the winners-who-didn't-win-a-prize! Because I think every video entered in the contest is a winner just for putting themselves and their lives out there in the public eye.  
 
Still, my fingers are crossed and I'm dreaming, wishing, and praying! Meanwhile, I hope you'll continue to share my video with anyone you think might be encouraged by it. Thanks to each and every one of you for your suppor. It's been a fun experience and it's not over yet! Love, Donna

Tuesday, February 15, 2011, 20:46:36

1

Geri Schroeder 
This is definitely one of the most moving videos I have ever watched. It is a winner---just like you.

Tuesday, February 15, 2011, 09:16:26

1

DBSdonna 
Thank you, Geri! I can always count on you for friendship and unswerving support. Love, Donna

Tuesday, February 15, 2011, 12:08:27

1

Doug and Debbie Liiller 
Your desire for a better life brought you to DBS-but your loving family was your inspiration! So much love in your life Donna lifts you up and surrounds you with endless possibilities and hope.  
 
During our next summer get together in Carbondale we won't need to shop for hats!  
 
All our love and best wishes for your amazing continuing recovery!

Tuesday, February 15, 2011, 07:48:00

1

DBSdonna 
Hi Debbie and Doug! Yep, hat-free next summer except wearing them has kind of grown on me now - ha! I do feel I'm faced with endless possibilities in my life. We are all looking forward to sharing this new life together. My hope is that my vastly improved condition will allow my guys to feel like they're "off duty" now instead of always watching over me. I AM blessed with everything of any importance in life. Thank you for your comments. Love to you both - Donna

Tuesday, February 15, 2011, 08:04:51

1

Susie Griffin 
Oh My God! ...... Donna, I really don't know what to say except (yeah, like you really thought I would ever really be at a loss for words -ha) "You are one of the most amazing, inspiring, strong, intelligent, honest and forthright women I have ever known." I believe that WHEN a cure for this disease is discovered, they will have to say that it was in large part because of people like you!! Love you! Suz

Monday, February 14, 2011, 15:14:58

1

DBSdonna 
Susie, I admit it is a bit shocking to think the video made YOU speechless! LOL! Thank you for the lovely compliments. I return the admiration in full for what you deal with every day. You are stronger than you know. Love, Donna

Tuesday, February 15, 2011, 07:32:18

1

Bull Dog Ranger 
Loved It!!

Monday, February 14, 2011, 14:48:04

1

DBSdonna 
Dear BDR - I've been waiting for your response! The fact that it's not a sharply funny comment shows that it must have "gotten" to you. So I can die happy now - my sensitivity training a resounding success with my most difficult student! Seriously, thank you for your comment. It means a lot coming from you. Love, Donna

Tuesday, February 15, 2011, 07:30:28

1

Maryruth 
Love this film -- and what a privilege it has been to work with Donna and her famiily! She is courageous and magnificent, and Dan has painted her story with artistry, understanding and compassion...and with great hope.

Monday, February 14, 2011, 14:22:26

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1

jacquie Thompson

1

DBSdonna 
Maryruth, this video wouldn't have happened if not for your help and your son's dedication, vision, and talent. I am filled with great hope for the new life I have to share and for future breakthroughs in neurological illnesses. I want to be just like you - active, interesting, passionate about what you do - from now until ????? Love, Donna

Tuesday, February 15, 2011, 07:27:53

1

Nancy Gramlich 
Dear Donna, What a heartwarming video on what better day than Valentine's Day! I am so proud of you. WOW,WOW, WOW, How much hope this gives people living with parkinson's. You are truly an inspiration. Hey, the guys look great! Darrell too!!!! Love ya, Nancy, Phil. Michael. Marc and Matthew.

Monday, February 14, 2011, 13:57:53

1

DBSdonna 
Nancy, remember signing checks for me when we enrolled the boys in a summer camp?! Now watch the opening seconds of the film as I write down the title. Those few seconds show just how much has changed with me! Thank you for your compliments and for signing my checks when I needed you to! Love, Donna

Tuesday, February 15, 2011, 07:23:23

1

Nancy Gramlich 
you are my hero..

Tuesday, February 15, 2011, 10:01:31

1

RICHARD WEYAND 
excellant

Monday, February 14, 2011, 12:23:40

1

DBSdonna 
Richard, thank you for watching and supporting Dan, my family, and me. ~ Donna

Tuesday, February 15, 2011, 07:20:52

1

Linda Woestemeyer 
I loved the video. Donna, you are one of the bravest people I've had the pleasure to know. What I never realized was how seriously debilitating your disease was. Though the 7 1/2 hr surgery was unbelievable to me, the results are so worth it. God bless you all!

Monday, February 14, 2011, 11:43:09

1

DBSdonna 
Hi Linda! My PD had progressed to the point that this past summer was pretty frustrating. Since I tended to stay to myself more when PD got bad, I was much more reclusive than usual. It's the nature of the disease to flucuate from moment to moment. Before I had the DBS, I had to go into my neurologists's office to be filmed while I was completely off my meds. The level of my disability - without meds - totally shocked us. We had no idea that my progression was that advanced! It showed that on days when I'd complain that my PD meds weren't working, they obviously still had been working somewhat because I couldn't walk alone without ANY meds in me. I'd already decided to have the DBS, but that day would have convinced me to do it if necessary. I can't wait to see you, Linda, to show off the new me! Love, Donna

Tuesday, February 15, 2011, 07:19:21

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