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*DBS (Deep Brain Stimulation)

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1

Melissa 
Just voted! Very inspiring story. I'm here in Denver. I'm a nutritionist/exercise physiologist/yoga geek and I'm volunteering in Joann Gibson's yoga class for people with Parkinson's. Bunny told me to come and watch your video. I loved every minute of it (sniff, sniff). Aside from all you've been through, I see what an incredible mother and role model you are. Your boys are amazing (and cute). And you are full of grace.  
Namasté  
Melissa

Tuesday, March 01, 2011, 16:35:29

1

DBSdonna 
Melissa, you couldn’t come from a better source than Bunny! Thank you for your nice comments about the video. I “sniff,sniff” every time I watch it …still! I’ve thought many times about visiting the yoga class because I do absolutely love Yoga. An hour of Yoga goes by so much faster than does an hour of step aerobics!  
 
Thank you for the comments about my sons too. I thought they did an incredibly good job on the video. My friend who directed the video sent me back their interview tapes after the video was done – the first time I’d gotten to hear what they said. It was another big tear jerker for me! And my husband? His interview was what every wife wants to hear.  
 
Finally, thank you for volunteering your time for people with PD. You’re wonderful to do that! Namaste ~ Donna

Wednesday, March 02, 2011, 09:32:07

1

Pat 
Thanks for sharing your story. I'm 59, diagnosed with PD 11 years ago and am considering DBS - your personal testimony is great to have as I struggle through the same thought processes that I'm sure you went through.

Tuesday, March 01, 2011, 12:43:58

1

DBSdonna 
Pat, thanks for writing. I’m so glad to hear that you’re considering DBS. I know not everyone has the same great response to the surgery that I’ve had, but why shouldn’t you be someone who does as well or better than me? I think my biggest struggle with the DBS was deciding that I was bad enough to need it. I thought of DBS as something that was way in the future for me – a last chance kind of hope. But now it’s seen as an earlier intervention – something to improve your quality of life now. So once I looked at it from that perspective, it seemed like a no-brainer (no pun intended).  
 
Before my surgery, I read a book called “Life With A Battery-Operated Brain.” I highly recommend it (although there undoubtedly are other good books about DBS too.) The author tells you what you can expect during and after the surgery and gives helpful tips too. One comment that I found very funny was about everyone telling you to get a good night’s sleep the night before the surgery. As if anyone could possibly follow that advice!  
 
I wish you all the best, Pat, as you try to make the decision that’s right for you and your family. ~ Donna

Wednesday, March 02, 2011, 09:19:30

1

John 
You are an inspiration. You have meet your disease head on and are taking the battle to it. Fantastic.

Monday, February 28, 2011, 16:27:28

1

DBSdonna 
I appreciate your comment very much, John. I like the image of me "taking the battle to it" - not wating for the battle to come to me. My neurologist - a really brilliant and dedicated physician - would have had me engage the enemy even soooner, but I just wasn't ready for the fight yet. In fact, I don't think I've mentioned the health care professionals who've helped me in any of my posts. Besides being blessed with my wonderful fanmily and friends, I have been so forunate to have the very best of care from my doctors and their staff. I would not be where I am today if not for them. So, yes, I did fight the good fight by having the DBS, but I had a whole batallion backing me up. Thank you for adding in your support too!

Tuesday, March 01, 2011, 03:00:26

1

Cheryle 
Amazing journey.... blessings to you!

Monday, February 28, 2011, 08:08:18

1

DBSdonna 
Thank you! Blessings to you too, Cheryle!

Monday, February 28, 2011, 09:42:10

1

DBSdonna 
###WHAT CAN YOU DO TO HELP? In response to comments I received on another site, I said that I honestly feel I'm very blessed in my life, very lucky despite having PD. In fact, although I would never have chosen to have PD, it has introduced me to some amazing people that I otherwise would not have known. It has brought out the best, most giving sides of my friends, family members and even strangers. I've met really caring and inspirational people because of having PD. So although I never wanted to have it - and still don't - having PD has brought a richness to my life that I might have missed otherwise.  
 
I've been asked what YOU can do to support DBS surgery and brain research? You can donate money to a PD organization in your area specifically to support research or you can donate money to one of the major national PD groups. You could "Buy a Brain" from the American Academy of Neurology Foundation - the group sponsoring the video contest. You also could volunteer your time with any of these same groups. They can always use help! It goes quicker doing a mass mailing, for example, when people have steady hands!  
 
There are many PD patients who can no longer drive and who don't have caregivers to help them. How about being their wheels or even just doing errands for them? My friend in the Seattle area who was responsible for the name of the video has advanced PD. She is just one example of someone who is desperate for help in so many different ways. I could go on and on! Any little bit of your time you can offer to help someone with PD is needed and appreciated.  
 
Thank you for watching our video and for caring about others. ~ Donna

Sunday, February 27, 2011, 11:21:56

1

Louise 
Thank you Donna and a special thanks to your family who has been so supportive. You are ALL an inspirtaion.

Friday, February 25, 2011, 21:07:09

1

DBSdonna 
Louise, thank you for the nice note. I especially appreciate the mention of my family because I'm only where I am now because of their support over many years. I hope the inspiration of our message gets to people who really need it. All the best to you and yours! Donna

Friday, February 25, 2011, 21:21:26

1

Suzie and Bob 
Donna  
Simply great! You are an inspiration!  
Love you cousin!  
Suzie

Friday, February 25, 2011, 17:49:01

1

DBSdonna 
Thank you, Suzie and Bob, for watching and for commenting on the video! I'll bet you two enjoyed the great music in it! Love you - Donna

Friday, February 25, 2011, 21:06:42

1

Shane Flansburg 
Donna - wonderful video! I passed it along to some friends and colleagues - and one of them even left a meeting when they saw me in their building, just to tell me how touched they were by your story (and that they voted for the video!). I am so proud to call you family, I am amazed by your courage, and I am so happy for what DBS has done to change your life! Let's keep spreading the word about new medical technologies and research, so many others can continue to have hope!  
 
Love and Luck! Shane

Wednesday, February 23, 2011, 16:17:26

1

Donna Miller 
Shane,what a sweet message you sent! Thank you! I'm very proud to have you as family too. I really appreciate your sharing it friends and coworkers too! Love, DONNA

Thursday, February 24, 2011, 16:42:51

1

Rachelle Romano 
Donna , You my friend have such a beautiful family and you are so truly beautiful inside and out!  
What a great way to tell your story! I finally made it through the whole video even though the tears  
and so many smiles too! I sent it out to friends and family and within minute these responces came back-  
Wow - incredible woman - incredible family - incredible technology! Thanks for sharing :)  
Wow...touching. sometimes we forget how truley blessed we are- What a lovely family & Brave- i can't imagine!  
So it must make your day to know you are touching peoples lives with each press of the send button!!!!!!  
Love & blessings, Rachelle

Wednesday, February 23, 2011, 11:48:48

1

Donna Miller 
Rachelle, your comment is really wonderful! I'm glad you were touched by the video, as were some of the people you sent it to. It does very much make my day when I find out that the video gave someone hope or knowledge or courage or whatever it is they needed to take from it. I feel very blessed by my family and friends and even PD (who'd have thought?) because it's led me to places I never would have gone on my own. Thank you for your friendship! Love, Donna

Thursday, February 24, 2011, 16:25:05

1

mary n 
Donna... my sister! I also have had DBS for my PD... two years ago and the results truly ARE amazing! I am astonished that more parky's don't have it done. I personally never thought that the results i had (and have) were at all possible. The meds are not all you can do to live a normal life. I would love to know more about your PD.... when and where were you born... where do you live now... what kinds of meds are you currently taking... Every dat still has a challenge to it but at least the problems are all put in perspective. LOVE THE MOVIE! ( I am writing a book). Hope you win. M

Wednesday, February 23, 2011, 10:45:43

1

Donna Miller 
Mary - I appreciate your compliments. And I am so glad that you too have had an awesome DBS experience! Doesn't it make you want to encourage everyone who can to have it - to lift the hold PD has on them if only for 10-15 years?! But it sounds like you are since you're writing a book - good for you! You can get more of my story by clicking on "Donna's Story" to the left of the video as well as hear one of Maree McRae's songs full length. If there's still information that you'd like to know, please e-mail me at DBSdonna@gmail.com and I'll answer you there. So happy to hear you're doing so well - keep it up!

Thursday, February 24, 2011, 16:38:40

1

Melissa W 
What a beautiful family and story. I am so happy that you have won your battle against Parkinsons! Live well, laugh often and keep on Loving MUCH!!! You have my vote

Wednesday, February 23, 2011, 06:51:02

1

DBSdonna 
Melissa, you couldn't have offered better advice! Thank you for your comments and for watching (and voting for!) my video. ~ Donna

Wednesday, February 23, 2011, 07:37:03

1

C. Scott Carver 
What an eye opener! Gets my vote!

Tuesday, February 22, 2011, 20:20:10

1

DBSdonna 
Thank you so much! ~ Donna

Tuesday, February 22, 2011, 20:56:52

1

Debbie Turner 
Donna,  
You are truly a remarkable women. You have a wonderful and supportive family, and I am sure they are extremely proud of you. Every day is a gift, and I know you will enjoy everyone.

Tuesday, February 22, 2011, 20:13:27

1

DBSdonna 
You, Debbie, are a remarkable woman with remarkable patience! S pulled out all his best tricks to avoid doing homework, but you were always up to the challenge. We needed you and you were there. Thank you for the difference you made in my son's life, for caring about him. Best wishes to you, Debbie, from a grateful parent ~ Donna

Tuesday, February 22, 2011, 20:56:01

1

David Kosak 
I'm so happy for you Donna. Best Wishes

Tuesday, February 22, 2011, 19:48:34

1

DBSdonna 
THanks, David! You certainly saw me at my worst at times. Please stop by sometime when you're in the neighborhood which, from what I hear, is pretty often anymore. My best to you and Mindy ~ Donna

Tuesday, February 22, 2011, 20:01:47

1

Jean Beckmann martin 
What a moving tale! It was great to finally meet you and put a 'face' with the stories Judy shares! Best of luck to you and your family...what a testament to family, faith and perseverance you all are.

Tuesday, February 22, 2011, 19:25:22

1

DBSdonna 
Jean, I really enjoyed meeting you too. You were exactly like Judy has described you! Thank you for watching the video and your nice comments. Your support both now and before I had the DBS surgeries - when you were part of the card shower- both mean a lot. Best wishes to you and yours. ~ Donna

Tuesday, February 22, 2011, 19:58:29

1

Sharon 
Hi Dinna  
What an amazing person you are. You have a wonderful family. I can't believe how grown up the boys are - handsome boys. I don't see Darrell anymore shopping, I think hemust be quite busy with work. Would love to catch up with you for a coffee or something. Love Sharon

Tuesday, February 22, 2011, 18:45:33

1

DBSdonna 
Sharon? Sharon Grey? Yes, it must be! Thank you for your nice comments and for taking the time to watch the video. I think my guys did a great job in it! S is going to be playing rugby again. You know what a big rugby Mom I am (shudder, shudder). Even after all the years of watching rugby matches, I still could use you by my side to tell me what in the heck is going on! I'd love to catch up sometime. All the best to you and your guys! ~ Donna

Tuesday, February 22, 2011, 19:55:03

1

doug 
Dear Donna, I know I met you years ago before your illness and want you to know I am the Aunt of your dear friend Judy Sigg, Lauri Hart, Suz Griff, & Terri Hunter, the Mullins girls. This has been such a touching video that you have made and I will vote for you as many times that I can. My husband has a cousin that had this same surgery a few years ago and it too was a success, she is a bit older than you are, more our age which is now 78 and soon to be 79. Want you to know that we are praying for you and your family. Our family has had a very rough couple of years after loosing Judy's mom, my youngest sister just two days after loosing our middle sone, Ron, along with my oldest sister just 6 onths before this. Hang in there dear Donna and know your family and all your dear friends are there for you, as I am also. Much love, Judy's Aunt Jo

Tuesday, February 22, 2011, 18:18:20

1

DBSdonna 
Dear Jo - I remember you well. I last saw you in the hospital waiting room just before Bobbie passed away. I can't even imagine (and don't want to) what it feels like to lose a child. My parents lost my oldest brother and neither of them were ever the same. Thank you so much for your ongoing prayers. It's great that your cousin-by-marriage also had a successful DBS surgery. I just read today that DBS was only approved by the FDA in 2002 for the treatment of PD. You are aunt to some terrific nieces as I think Judy and her sisters are the most wonderful people in the world! My heart goes out to you at all your losses and I wish you all the best going forward. Love, Donna

Tuesday, February 22, 2011, 19:49:50

1

jacquie Thompson 
Donna,  
Thanks you for having the courage to make this video. You and Dan and your family are special people to be sure!!! May God continue to bless you and your amazing family.  
 
Jacquie

Tuesday, February 22, 2011, 16:37:21

1

DBSdonna 
Thanks so much, Jacquie. I think my guys and Dan Weyand are all pretty special, caring people too. God bless you and yours too. ~ Donna

Tuesday, February 22, 2011, 16:55:47

1

Mike 
What a wonderful story in video, viewing this was my first connection with PD; it was very moving. May God continue to bless you and your wonderful family.  
 
Mike

Monday, February 21, 2011, 17:34:47

1

DBSdonna 
Mike, thank you for watching the video! If you've never actually seen someone with PD, this is not the video to show all that PD entails. Instead this is a victory video - my victory and that of all who love me in beating PD back for awhile. I am so grateful to every researcher and every supporter who made the brain research that resulted in DBS available to me! Blessings on you and yours too ~ Donna

Tuesday, February 22, 2011, 08:39:20

1

Paul M 
DBS Donna,  
Thanks for sharing this amazing document!!

Monday, February 21, 2011, 07:51:15

1

DBSdonna 
Paul M - Thanks for watching our video and for finding it amazing! Please feel free to share it with someone you know who might benefit from it! ~ Doonna

Tuesday, February 22, 2011, 08:35:07

1

mlschroder@comic St.net 
I wanted to say your film is great and hopefully anyone needing or awaiting their chance to get the DBS operation will watch and know even though this is not a cure it is certainly better than suffering through the alturnitive shaking and disconesia. You may know our son Paul who has had the disease sence he graduated from college at the age of 32, and was taking 36 pills a day and still could not get up on his own or have disconesia so bad he would throw a fork across the Rome and wouldn't go to resaurants with us before he received his first DBS in 2004 in Ca, has infection in 2006 and his second in 2007 here in Co at Universaty Hosp . He leaves the 27 of feb for Wash DC to visit congrss and try getting help on funding for the disease, his 9th trip as a Congrssional co ordinater for district 1. He only wishes he could be as lucky to have a family like yours, his parents at the ripe age of almost 80 are his care partners. Good luck on your future adventures. Regards Eliner and Marvin

Sunday, February 20, 2011, 15:26:58

1

DBSdonna 
Eliner and Marvin - Your post made me cry! No, I don't think I know your son, Paul, at least not by name. My doctor is affiliated with Swedish rather than Univerisity Hospital, although I know several people who go to UCH and rave about the wonderful doctors there. I'm so glad that Paul was able to find relief through his first DBS and then after an infection, was able to have the second DBS done. It's got to be so hard on you to be caring for a grown son at a time when you should be retired and enjoying life. It's got to be just as hard to be Paul, unable to live independently. I'm sure you are totally proud of your son for taking the fight for funding to Washington on behalf of all of us with PD. Please tell him, on behalf of me, thank you for his efforts. The woman who inspired the title of this video is struggling in a similar situation after being through what can only be described as sheer hell - something those of us with PD never ever want to have to face. I wish Paul all success in "Washington. Please ask him to contact me at my e-mail address: DBSdonna@gmail.com if he needs more stories of PWP's who are really struggling. May God bless all of you. ~ Donna

Sunday, February 20, 2011, 17:38:46

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